tag:blogger.com,1999:blog-3415835401900288037.post5186885327569769973..comments2023-12-19T01:15:32.407-05:00Comments on The FibroFrog: Am I As Invisible As I Feel?Amyhttp://www.blogger.com/profile/13282097922247477562noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3415835401900288037.post-15583637433212508482018-07-21T16:55:03.794-04:002018-07-21T16:55:03.794-04:00Thank you, Amy, for this amazing post. I was diag...Thank you, Amy, for this amazing post. I was diagnosed with fibro five years ago, and it's so amazing to be able to read something from someone who not only understands what I (and all of us) go through, but shares many of my hopes, dreams, fears and frustrations and can articulate them well. I've found that blogs like yours have been a great help, just knowing that other people who understand and can put their finger on my experiences are out there. I know it's years since you wrote this, but you have my gratitude.Josh Lepsyhttps://www.blogger.com/profile/00692171488013293895noreply@blogger.comtag:blogger.com,1999:blog-3415835401900288037.post-18536034472916432462013-04-15T06:38:56.615-04:002013-04-15T06:38:56.615-04:00I want you to know that you have given many of us ...I want you to know that you have given many of us the courage to continue to hope and push for our own pain free treatment plans. You have the courage and strength to say out load what so many of us with Fibro don't or won't say. You may think you are alone, you aren't. We are all here for you. We know your pain and depression, we are all in this fight together.<br /><br />Take care!Tammy Shttps://www.blogger.com/profile/07899449882772261434noreply@blogger.comtag:blogger.com,1999:blog-3415835401900288037.post-21577345518346007732013-04-08T02:34:33.898-04:002013-04-08T02:34:33.898-04:00Amy, authenticity is worth more than all the fake ...Amy, authenticity is worth more than all the fake niceties that you see online. My aunt suffers from really bad fibromyalgia and she is in CONSTANT agony. My cousins both live in the mainland US (we live in Hawaii), so I try to help her out as much as possible but it's hard. Watching her writhe in agony is hard, seeing her not be able to sit in a chair for too long because she's in agony... is hard. Her doctors don't know how to help her, she's on pain meds that barely dull the agony and then it seems like the problems just pile up. <br /><br />I wish there was a cure, or a legit treatment that could help at least somewhat aleviate the pain and agony you go through. My aunt is in her late 60s though (with a TON of other back problems from a car accident) so they told her there's not much they can do. My friend is in her mid 40s however, with chronic fibromyalgia and she suffers just like you and my aunt but she told me her symptoms have decreased since she started juicing. She got a juiceman juicer and will substitute a meal or two a day with juice. Helped her with her weight a lot and though she's still in pain, she said it's way better. I don't know if that's something you'd be interested in but yeah, just thought I'd share. <br /><br />There IS hope. I will be praying for you, rooting for you, hoping that with each day, your hope grows and your pain lessens. I am sorry for going on so long but I really appreicated your kind words to me on FB tonight and I came to your blog to follow you because I realized I hadn't yet and I was just reading your posts and your pain and my heart goes out to you. I think it's awesome that you aren't afraid to show the truth of the pain and not make like everything is so peachy keen, happy dappy. People who act like they have a diesease but fake happiness do more harm than good. Your blog shows others who suffer like you that they are not alone so they feel like there is hope for them and there is. <br /><br />You are amazing Amy and I look forward to reading your blog and getting to know you in the future. <br /><br />Aloha,<br /><br />Jean <a href="http://www.whatjeanlikes.com" rel="nofollow">{What Jean Likes}</a>WhatJeanLikeshttps://www.blogger.com/profile/13588994389173194456noreply@blogger.comtag:blogger.com,1999:blog-3415835401900288037.post-74294885793821372662013-04-06T02:59:17.554-04:002013-04-06T02:59:17.554-04:00Thank you for your honesty and courage. I love Pin...Thank you for your honesty and courage. I love Pinterest and found a pin on the 21 best Fibromyalgia blogs, as I read the descriptions one by one I knew that "cute" & "spunky" blogs weren't for me because I am suffering and going through med changes to get undepressed. I have hope, mostly just to get through the next hour and the one after that and the one after that. I will be your friend. Anonymousnoreply@blogger.com