Online Seminar: Living With Chronic Pain

The flyer didn't show up very well.  The two online sessions that are available are 3pm and 7pm EST, Saturday August 3, 2013.  The cost is $15.  Send payment via paypal to: jaammull@aol.com.  In the message section, please include your name and which session you'll be attending.  Please help spread the message!

Blog Issues

Well friends, I went in and added a new page to the blog, for press.  The homepage was working fine before this, but now it isn't.  I don't know what I did wrong, because the only thing I did was to add a new page, then save the page arrangement.  All of the tabs for different pages across the top of the home page are fully loading like normal, but for some reason only the top 1/3 or 1/4 of the home page is showing up for me.  The rest of the page is a blank pink color.  I didn't mess with HTML or anything.  I just simply added a press page.  Out of desperation to make the home page work right again, I even went back in and deleted the press page completely!  It's still doing the same thing.  On that blank pink color there are two letters in maroon.  They are "QC".  I had my daughters boyfriend try to go to it and the page did the same thing for him, as it is doing for me.  Someone from FB though, said it loaded correctly for him.  If you guys can read all of this post, and my homepage looks fine to you, PLEASE leave me a comment here at the blog and let me know!! I can access messages, other pages, etc.  It's just the dang home page I'm having problems with. I have an SOS post out on my personal FB page so if you're a blogger and know what's wrong and how to fix it, please comment over there and let me know!  I'm in complete panic and meltdown mode now!

Do You Wish Your Family & Friends Would "Get It"?

Do you ever feel like your family and friends just don't "get it" when it comes to you and your health?  Is it hard for them to comprehend the type of chronic pain you deal with on a daily basis?  Then gather everyone around, and sign up for The Fibro Frog's very first webinar!  $25 per registration, and you can have all of your family friends there, gathered around the computer with you!  Please share this event throughout your social media sites!

A Kidney For Jay

I have a friend, that has a beautiful family.  She has a wonderful husband and two extremely adorable little boys.  Her husband, Jay, unfortunately needs a kidney transplant.  Hilary created a facebook page awhile back to try and get the word out.  

I haven't "met" one single person yet that suffers with Fibromyalgia, Lupus, Rheumatiod Arthritis, Osteo Arthritis, etc. that hasn't been a top notch stand up person.  You know how we all band together as one big family, and try to help one another as much as we can?  Well I need you all to pull Hilary and Jay into our circle and help them get the word out that they're looking for a live kidney donor.  I know that most of us aren't eligible for something like this, but you never know who on your friends list may actually consider it or be happy to do it.  We need to get the word out to every person we possibly can.

I'm asking you all to please take a minute or two to go "like" the facebook page "A Kidney For Jay".  To get to the page, just click the words above that are highlighted, or else click right HERE.  After you "like" the page, please share it.  It always makes me feel good to do something nice and helpful at the beginnng of a new year.  I feel that it's just good karma, besides the fact that it's just something we should all do anyway.  I, along with Hilary and Jay, would be very grateful for any "likes" and shares (through all of your social media sites if you would please), but besides us appreciating it, think of this; you man indirectly be a part of saving a person's life.  How humbling would that feeling be?

I'm going to share what Hiliary has said in the "about" section of the facebook page:

"At just 40 years old, my husband Jason is in renal failure and on dialysis. He is on the transplant waiting list but he average wait time os 3-5 years. His best hope at this point is to find a living donor! Can you imagine how it would feel to give the gift of LIFE? I'm not a candidate & I want my husband around a lot longer! All I can do is help spread the word about his condition. 

The actual transplant surgery is performed laproscopically, minimizing the risk, discomfort and recovery time of the donor. Most donors are out of the hospital within 2 or 3 days. The cost of the transplant surgery is covered by the insurance - the living donor does not have to cover any of the costs. If you have to travel to be the living donor, all travel expenses are Jay's responsibility.

His blood type is B+ so compatible blood type would be a B or an O (+ or- does not matter).

Yes, it is a lot to ask of someone, but the reward is beyond comprehension!"

My Dream For 2013

I'm really excited to turn my dreams into reality in 2013! A new career of helping to educate and to advocate for those with chronic pain & fatigue illnesses. I can't do this though without your help. I can't even get my page into the GoFundMe search results until the fund has received at least $100 in donations. I'd be very grateful if you all would help me to help others. Let's make 2013 the year of awareness and change in thought process for the approximate 116 MILLION people that suffer day in and day out with some sort of chronic pain illness. Pain that debilitates and takes away from a person's quality of life! If you don't suffer from a chronic pain illness, if you'd have to live ONE WEEK like we do, you'd understand WHY this is such an important feat.

I, along with approximately 115 other U.S. citizens would be extremely grateful for any help you can give us.  I also need a career, and where education and advocacy is so important to me, getting the seminars off the ground would be a dream come true for me.  The more people who know, and start to understand what people with chronic pain go through day-to-day, the better the chance we'll have at demanding further research.

I'm going to be completely honest here.  I do NOT have any quality of life the way things are.  I try so hard to hold onto my ADL's (Activities of Daily Living).  As much as I don't want to admit it, they're slowly slipping away from me.  I'm only 42 folks, and there are people who suffer like I do that's a part of The Fibro Frog, that are in their early 20's.  Research has made some great advances in the field of Fibromyalgia.  They now have proof that it's VERY real.  It's been proven that Fibromyalgia is a neuro-immune disorder.  Our nerve endings are significantly  effected.  Tests and various studies have proven that we really are having significant pain.  Brain imaging studies have also proven that the reason we're so tired all the time - wake up as tired as when we go to bed - is because we never go into the deep sleep cycle.  We don't get into REM, so we're never getting that restorative sleep that the body so desperately needs.  The old thought process of "There's nothing wrong with these people, they're just crazy and lazy" is now gone since research has proven so much.  Unfortunately, this is still the biggest myth out there surrounding people with a chronic pain condition such as Fibromyalgia.  We need funding for MORE research, so that we can advance on to find out what causes people to get Fibromyalgia.  We need funding for MORE research so we can find a CURE for Fibromylagia.  Most of us would even be completely stoked if they'd even just find a concrete universal treatment plan that would WORK for EVERYONE who's effected.  Right now we don't have that.  We have one pill for one symptom.  One pill for another symptom.  Sometimes a pill will work, then for others it won't work.  Right now, for lack of a better word, the doctors play russian roulette with us.  

Not only do I need a career that I can actually work, since there's no way in heck I could work a typical job, but I need to get the message out.  The message that "we" aren't crazy.   "We" aren't lazy.  My seminar not only hands a ton of information and resources to the person effected, but it also reaches out and shows the people who are NOT effected, how real and debilitating living with a chronic pain condition is.  It opens peoples eyes as to how much more research is needed.  If people doesn't understand the "truth's" of chronic pain, then there never will be pressure put on the government and private proprietors to give more money for more research.  Research that's needed more then I could ever convey.  I'm reaching out to everyone, to ask that you part with a couple bucks donation so I can get this dream off the ground.  If you're able to donate $5 or more, then you can donate via my GoFundMe account by clicking HERE.  GoFundMe has a minimum donation amount of $5.  If you aren't in the position to donate at least $5 but want to contribute, you can donate $1 or more via my PayPal account: jaammull(at)aol(dot)com.  

No matter what, I want to thank all of you for at least reading this and following along with my progress.  I'm blessed that I've gained so many followers in such a short time period.  Less then 1yr, and that amazes me.  I'm thankful and greatful for each and every one of you to have come into my life.  I hope you all have a Blessed holiday season.  Merry Christmas to you all!