Adolescent Fibromyalgia Research Study Enrolling Today

Thank you for being a reader of The Fibro Frog. I am writing to share some information about a clinical research study that may be of interest to you. Research studies contribute greatly to the overall progress in understanding and treating diseases and The Fibro Frog supports that mission.

Adolescent Fibromyalgia Research Study Enrolling Today

Does your child suffer from widespread, unexplained body pain that impacts their daily routine?

If so, local research study doctors are studying an investigational medication to see if it can help manage symptoms associated with juvenile fibromyalgia in adolescents.

If your child is between 13 and 17 years of age, and has juvenile fibromyalgia or is experiencing unexplained aching, stiffness, fatigue, or trouble sleeping, he or she may be eligible to participate in a clinical research study.

• No-cost investigational study drug
• No-cost study-related care from a local physician

Visit www.FibroStudy.info anytime, 24 hours a day, seven days a week.

WWW.FibroStudy.info

   

Sincerely,

Amy Mullholand

Founder of The Fibro Frog

A Catch 22

One of the most frustrating things about living with Fibromyalgia, is all of the catch-22's that come along with it.  My current dilemma is one that I know all of you with fibro, have faced as well.  When you're in a pain and fatigue flare, you seriously cannot do much of anything.  House work is out.  When housework is out, you end up with everything piling up into a whole ton of work.  Like, a pile of laundry:

and a sink full of dishes:

When we start coming out of a flare, we have so much work to do, to try and catch up.  But ....when we do that work, we end up pushing ourselves to get it all done, and then we find ourselves right back into flare mode again.  

It's such a never-ending process that is beyond frustrating.  This is where I've found myself for the past month.  My flare the past week has been horrible.  Fatigue like I haven't felt in some time.  Pain that even occurs while trying to sleep. Causing me to toss and turn the entire night as laying in one spot longer then about 20 minutes causes pressure point pain.  Hips scream in pain.  Arms, shoulders and neck screams in pain.

Once the flare ends, I'll be stuck picking up the slack that I can't control during this flare.  So I'm sure, I'll be right back in another flare within a day or two of this one ending.  I know every single one of you with fibro can relate.  I'm venting for all of us with this post!  I'm hoping to come up with some tips and ideas to make our lives easier and hopefully break this catch-22 cycle we're all stuck in!

The Joy Of Cooking

Before fibromyalgia and all of my spinal and arthritis conditions, I loved to cook!  I never loved the clean-up afterwards, but cooking brought me such joy.  So much joy, that I even used to own a little "eatery".  I call it an "eatery" because it was inside of a mall, not a real restaurant.

As all of my conditions have worsened over the years, it's become so hard for me to really cook.  The pain is excruciating.  Some days, it brings me to tears to stand long enough to even fry an egg.  Therefore, I don't do a lot of real cooking anymore.  This truly makes me sad.  As I'm sure most of you know, fibro steals so much of our happiness.  Even the small things that people take for granted, such as cooking, are taken away.

I am SO proud, because I cooked a meal tonight.  A good meal.  I zested lemons, and chopped potatoes, and prepared 2 whole chickens.  I made lemon-pepper chicken, chunked potatoes, baby carrots, and fresh grean beans.  I had real, alive, eating, breathing people over for supper!  My daughter and her boyfriend, my son and his fiance, and a 12 year old boy who's parents are good friends of the family was hanging out with me today.  

In the middle of making this delicious meal, I was in so much pain I was fighting back tears.  Part way through the preperations I wildly wonderded what in the heck I'd been thinking, to undertake this task!  When the timer went off, I had to have my son take it out of the oven, and there's no way I could've ever carried the platter to the table so my daughter graciously did that task for me.

I hate to say it, but I was in so much pain that I wasn't even hungry.  Still, I forced myself to eat a little and indulge in the victory over fibro tonight.  I may still be sitting here hurting so badly that a handful of vicodin sounds like an amazing dessert  ....but I did it!  I beat fibro today!  I did something that I used to love to do, and I enjoyed it with my family!

**Disclaimer -the "vicodin" reference was thrown in to try to be funny, as I don't take any narcotics for my fibro at all.  I've refused them since diagnosis because I know that fibro is something I'm going to have to live with for the rest of my life and I don't want to become addicted to narcs.  I also realize that once I take one kind for so long, they'll stop working and there's only so many drugs out there.  I don't want to be in my 60's or 70's and in double the pain I'm in now, with nothing left to take because my body has built up a tolerance to all of the pain killers out there.  Some days (like tonight for instance haha) I wonder if the time has come to start taking something for pain, but alas I just pop a diclofenac 2x a day, grin, and bear it.  :)