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Wednesday, October 10, 2012

Dear Mr. RN Quinton,

So many things to say.  Where do I even start. Hmmm .....first, I'd like to say that I'm not sure how you made it through nursing school when you either obviously can't read, or can't comprehend.  Maybe both even?  This became a "fact" to me because in every single room of the ER where you work, they have great big posters hanging that has the mission and values listed.  The number one thing is that patients will be treated with respect and dignity and compassion from all medical staff.  I'm not sure Mr. RN Quinton, but I really think that would include YOU! I'm sorry to say that you completely fail in this area.

When you ask a person if they have any chronic illnesses, it might be construed as disrespectful when they tell you one of their chronic illnesses is fibromyalgia and you reply with a long drawn out "oookkkkaaayy.  Well, do you have any real chronic illnesses?"

Your second fail followed just moments later.  After you pointing out how swollen the entire top of my hand was, and telling me to take my rings off before they "get stuck", you go to take my pulse and you grab my affected wrist.  As you grab it and start squeezing it, the first indication that you just messed up would have been my body immediately tensing up while I loudly yell "Ouch!  Your thumb is really hurting me!".  You'd think that at that point, you might have immediately let go and took the ONE step to the side that you'd need to take my pulse on the wrist that isn't in any pain or trauma.  I'd think an "Oh gosh! I'm sorry I hurt you" would have quickly followed.  I honestly couldn't believe that instead you said "Well that was your wrist.  I thought you said your hand hurt.  Which is it? Your hand or your wrist?". Are you kidding me?!  I told you that origin of the pain was on my hand about 1/4-1/2 of an inch above my wrist.  You can clearly see that my   hand is swollen from my wrist to my fingers.  After all, you pointed out that I needed to have my rings off because my fingers were swelling.  Therefore I'd think you'd have the common sense to realize that part of your LARGE thumb was also pushing on the spot of origin on my hand, 1/4-1/2" above my wrist and that my wrist itself also has pain and is also swollen along with the hand, and the fingers.

Now, I thought I was going to a hospital to be diagnosed and treated.  I didn't realize that I was going to have to play "baseball" but unfortunately you, Mr. RN, forced me to play.  Your third strike with me?  Yeah, that would be when you were wrapping my hand and kept disgustingly telling me to hold my hand out straight and to keep my fingers spread apart while you were wrapping.  As I was saying "ouch" and gasping from pain taking my breath away as I attempted to hold my fingers apart, I'd think that you'd find a different way for me to position my hand/fingers that wasn't as painful.  I'd already told you that moving my fingers in any way caused me excruciating pain. You wanna know something else?  I was only 4 classes away from sitting for MY nursing state boards and there was no reason in the world for you to even want me to spread my fingers completely apart while you wrapped my hand.  Not my fingers, my hand.  Do you see any reason for him to freak out, unwrap, yell at me to keep my fingers spread, and re-wrap my hand?? Because I sure don't!


You, Mr. RN Quinton, made it crystal clear that you don't believe in fibromyalgia and that you had decided that because of my fibromyalgia that you don't believe in, that you were going to be a complete jerk to me and not care about my current pain that I was there to be seen for.  I would've thought, after you knowing the doctor was freaking out because my x-ray showed two bones in my hand with pointy calcification spots from an old injury, and many bone fragments floating around in my hand, along with the doctor believing that by hitting the palm of my hand falling into the bath tub that it pushed a pointy bone up and severed tendons and ligaments and him calling to refer me to an ortho right away and telling me that I need surgery, would be a clue to you that I honestly was in pain and this wasn't just some "faker fibromyalgia patient" and that maybe you should've cared whether or not you were hurting me wrapping my hand.  (Whew, HUGE run-on sentence but I'm kind of mad and snarky right now and I don't care enough to want to go correct my bad grammer.)  Anyway Mr. RN Quinton, that was your third strike and you were out!

You, Mr. RN Quinton, are a total DHAC (doesn't have a clue).  You, Mr. RN Quinton, are one of the reasons why I put together my Living With Chronic Pain seminar in the first place.  You, Mr. RN Quinton, are why I'm going to call the hospital and attempt to book my seminar in their facility, to present to their staff. Also, you're lucky Mr. RN Quinton, that I absolutely can't stand even the thought of confrontation.  Had that not been the case, I would have completely unloaded on you tonight and it wouldn't have been pleasant.  One more rude, disrespectful move by you tonight would have pushed me over the edge and I wouldn't have been very polite, friendly, or professional.  I had a complete arsenal of words circulating in my head that wasn't very nice!

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Camera Bag Giveaway

Mommy and Baby Reviews, Mom Does Reviews, Emptynester Reviews and It's Free At Last brings you the Ultimate Camera and All Purpose bag giveaway. Enter for your chance to win the bag of your choice.

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Monday, October 8, 2012

If You'd Only -------- You Could Cure Yourself

I've heard that phrase SO many times lately that I'm ready to scream, cry, and pull my hair out!  I have a friend who means well, but calls me every few days telling about some cactus-juice-wheat-germ-iodine-swim-in-warm-water-while-blowing-through-a-hose-while-pouring-holy-water-on-my-head cure that works "..and I really mean it because my best-friend's-cousin-who-is-friends-with-my-grandma-who-lives-in-Belgium-with-the-brother-of-a-priest-who-had-a-prophecy-that-this-will-work" was cured of her Fibromyalgia and she had a really bad case of it! Hmmm ....really?  That's so not interesting.

Does this woman honestly believe that if there was a proven "cure" for Fibromyalgia that I wouldn't already have jumped on it?!  Nooo, I wouldn't do that because I like living virtually every day of my life in pain.  I like the fact that I can't go work and make money that I desperately need.  I like feeling as if I have Alzheimers at the age of 41.  I absolutely love trying to talk to someone and then sitting there saying "ummm... ummmm.... shoot!  I forgot what I was going to say.".  I also really love the fact that my concentrate is just so great.  You know, I've only spent close to an hour and a half now to write these two paragraphs.  -Not time consuming what-so-ever.  I absolutely love the insomnia that I deal with on a daily basis.  You know, because life is just so much brighter when you look at it with 2-4 hours of sleep!  I just jump up and down with excitement over the depression that the pain and insomnia cause.

No matter how well meaning people are when they say this stuff to you, it gets really old, really fast.  Seriously, I go to the 2nd rated Rheumatology clinic in the entire U.S.  If there was a cure, they'd know about it.  They'd have me on it.  I wouldn't be desperately advocating for research to find a cure.  I wouldn't be trying so desperately hard to educate people about the myths and truths of living with a chronic pain and fatigue illness.

Every time Sara says something like this, I try to carefully let her know that I appreciate the fact that she cares about me, but that there is NO cure for Fibromyalgia.  She just adamantly keeps arguing with me that isn't true.  This is just another reason why holding my chronic pain seminar is so very important to me.  There's just so many myths out there that need to be dispelled.  If they aren't, then I'm seriously going to lose my mind one of these days and end up completely unloading on one of these well-meaning people in my life. Please remember that I'm doing a $1 challenge, and share it with your family and friends.  My prayer is that I have enough in donations by my birthday, November 18th, to hold at least one seminar.  To pay for the conference room and to pay for advertising.  I challenge everyone who reads this post, to donate $1 to my GoFundMe.org page.  You will find the donate button on the right hand side of this blog.  Once you're on my donation page, I ask that you please share the link on your social media sites.  You all can't imagine how grateful I am for every single $1 donation that's made towards my cause.  If you can't accept the $1 challenge, then I ask that you'd please at least share my donation page via your social media sites.  I appreciate each and every one of you out there!

Thursday, October 4, 2012

Giani Granite Review and Giveaway



The Fibro Frog is excited to bring you this review and giveaway compliments of Giani Granite!  I was not paid to provide you with this review and giveaway, but I did receive a free granite paint kit in my own color choice to use and base my review off of.  I chose the Chocolate Brown kit.  Let me tell you, when I received my kit I was sooo super excited to try it, but then I was also sooo scared that I'd mess it up LOL.  I kept procrastinating using it, for fear I'd have a really messed up bathroom sink!  Finally, I forced myself to set a date for the review and giveaway to go live, so that I'd have to use the paint and stop procrastinating LOL.  See, I'm not a "crafty" person, nor am I a "handy" person around the house.  All of my anxiety though, was for nothing!  This kit was so easy and fun to use!  My daughter, Courtney, helped me to sponge on the minerals and even she said "Wow, this is actually fun to do"!

Looking at the kit, I thought that there wasn't any way in the world that I'd be able to make my plain ole white bathroom vanity top look like the granite looking countertops in the photos.  I'm actually really impressed though!  Here's a photo of what My bathroom sink looked like before the Giana Granite Paint.  

My daughter and I walked into the bathroom and looked at my clean, nice whit vanity top, then looked at each other and kind of giggled.  We had the can that said Step 1 Primer and shook it up.  When we opened it, we both peered into the can, then looked at each other.  Courtney said "It's black?"  Yep, it was black.  As we were applying it, we kept giggling and saying how we better not mess it up or we were going to be in big trouble!  Here's a photo of it after we'd applied the primer:

We had to let that dry for 8 hours.  After the 8 hours it was time to apply the 3 cans of minerals with the sponge.  We had the option of doing all one color and letting it dry, then doing another color and letting it dry, then finally applying the last color or we could just do small areas and apply one color right over top of the other color.  We chose to do the latter.  Courtney hit on one side of the sink, and I grabbed the other.  Here's what it looked like before we applied the final top coat:

We had to allow this to dry for at least 4 hours before applying the top coat.  Two coats of the topcoat is pretty standard to use, and you can't do over 3 layers.  We chose to do 2 coats.  I absolutely can't believe it, but it looks GREAT, it looks like GRANITE, and I did it myself!  If you love the look of granite countertops but you don't love the price, then the Giani Granite Paint is most definately the way to go!  Here's a photo of the finished product.  -And I want to apologize to you all that I can't get a full shot of the sink as in the very first photo.  I sold my backup camera and had to let the kit lens go with it.  Therefore, all I have a big zoom lens to use and my bathroom is pretty tiny.  I couldn't get a full shot.
On the far corner, I believe you can easily see how shiny the top coat made it.  It truly does look like granite!    Like I'd previously stated, I chose the Chocolate Brown kit to base my review off of.  What is so great about any of these kits though, is that you can totally customize how much of each color you want to show through.  You can even go back and add some more of the black primer to have it show through more.  So someone else may purchase the same Chocolate Brown kit that I have, but there's may look lighter or darker then mine.  It's totally up to you how heavy you apply the colors!  I highly recommend the GIANIgranite Kits!  Now, if you'd like to enter to win a FREE kit of your own, enter on the RaffleCopter form below!  This contest is open to U.S. residents and the prize will be shipped directly to the winner from Giani Granite, once I provide them with the winner's name, address, phone number, and the color of the kit they'd like to receive!

All entries will be verified so please make sure that you do what's asked of you, if you hit the "enter" button!






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HURRY! HOT Deal On Mediflow Waterbase Pillow!

My contact from Mediflow just sent me an email, asking me to let you all know that they're doing something for the very first time!  Right now, if you go to the Mediflow facebook page you can click to claim a $10 mail-in rebate on the purchase of a Mediflow Waterbase Pillow!  Mediflow told me that you'll never get a Mediflow Waterbase Pillow any cheaper then this offer!  I currently have a review & giveaway going on this pillow, that's open for another 6 days.  You can read what I have to say about the pillow by clicking HERE.  Don't wait to see if you win or not though, because I guarantee you that you'll want more then one ...everyone in your house will want one after trying it out.  They're only giving out 100 of these $10 mail in rebates, so secure yours while they're still available!!  Again, go HERE to grab your coupon while it's still available!!

Tuesday, October 2, 2012

All The Small Things


You hear people say this, and tend to roll your eyes.  I know, I've done it myself in the past.  I've seen people do it too many times to count.  The little things in life, are all too commonly taken for granted.  People don't realize this though.  Even when it's told to them, they kind of nonchalantly stare past you while nodding their head up and down and grunting something that's barely audible as a "yeah".  

I'm here to tell you though, that the little things really do mean a lot.  Living my life with chronic pain and fatigue illnesses shoves just how true this saying is, right down my throat on almost a daily basis.  I said, and have written many times, that I'd give anything to have just one week, or even one day, where I could do the little things in life without paying for it with unrelenting pain and fatigue for days after.  I got my wish.  This past Thursday I had more energy then I've felt in a long time.  My pain level was low.  I honestly couldn't believe it, seeing as how I've been stuck in a pain and insomnia flare since my husband left me on April 8th.  My energy and low pain level lasted all day Thursday, Thursday night, and Friday.  Friday night though, I went to stand up and had to push & pry myself out of my chair while loudly exclaiming "Ouch!".  My knees were so stiff and hurt so badly.  Usually once I'm up and take a few steps, the pain diminishes until I go to sit down again, then the bending motion of sitting makes me say "Ouch!" one more time.  Not this time though.  My knees stayed stiff all the way to the kitchen and all the way back to my chair.  Each step caused excruciating pain.  I sat down and mentally cussed to myself that the pain & fatigue couldn't have held out for another 24 hours.  See, my youngest daughter turned 17 this past Saturday.  She was having a bonfire birthday party Saturday night to celebrate.  I held on to hope though, that I'd wake up Saturday pretty well pain free again.

I went to bed, mumbling the prayer to please allow me to wake up Saturday with energy and low levels of pain. Every year on their birthday, I allow my children to pick what they'd like me to make for supper that night.  My daughter had requested my home made broccoli, rice, and cheese casserole.  It certainly is good, but a ton of standing to chop the onion and celery, and a ton of standing and stirring until the cheese is melted.  I also had to make her birthday cake on Saturday.  Saturday rolled around, and as I got out of bed I knew I was once again doomed.  My body hurt. I was so tired that I felt like I was in a fog.  I felt as if I hadn't ever gone to sleep the night before, and like I was outside of my body watching it move around.  Regardless, I had these things to do and just had to do them regardless of how I felt.  

I've always loved baking.  I've always loved celebrating my children's birthdays.  The fact that I couldn't do things that I always enjoyed, was like a kick in the gut.  Fibromyalgia and arthritis once again had stolen my joy.  I really had to push myself to get the things done that I needed to do.  I kept angrily thinking to myself "Yeah, of course!  Of course the break in pain and fatigue couldn't have held out for one more day.".  In the middle of my self-pity episode though, I stopped myself and thought "What are you doing?  You've wrote, prayed, begged for just one day without the horrible pain and fatigue.  You got more then one day. You got a day and half reprieve from it.  Don't be greedy Amy.  Be thankful.".  That stopped me from the stomping around and feeling sorry for myself.  I even felt kind of guilty for being angry that the reprieve didn't hold out.



After pushing myself Saturday and Saturday night, I'm still paying for it today.  I'm so stinking tired.  I didn't get out of bed until 1:38pm today, and yet I feel like I'm walking around in a fog.  I can't concentrate on anything.  I've been trying to write this blog post for over an hour and a half now, and this is all I've wrote.  People take things like writing something they want to say for granted.  Things as simple as baking a cake are taken for granted.  People sometimes say "I don't feel like cooking tonight, let's just go out to eat".  The fact that they can cook if they so choose, is taken for granted.  For me and people like me, we'd give anything to be able to go stand in the kitchen and cook a meal.  To prepare the meal without it causing such pain that we are literally in tears.  People always complain about hating to do their dishes or their laundry.  At least they can do their dishes and their laundry.  

Today is Tuesday, and just from making a casserole, baking a cake, and cleaning up the mess and dishes from the casserole and cake on Saturday, I'm still paying for it today.  I hurt.  I'm beyond fatigued.  I can't concentrate.  I can't accomplish any major task today without it being extremely mentally and physically hard for me.  I'd give anything to be able to do simple, everyday things again.  Things that others look at as a chore, I'd be tickled pink to be able to do.  Until you live your life trapped within pain and fatigue, you really don't understand how little things mean a lot.  The next time you have to fold and put away your laundry, stop and think about this post.  Instead of huffing and puffing and thinking how much you "hate" doing this chore, stop and realize how lucky you are that you are able to do the chore without paying for doing it, for the next few days to few weeks.  Start thinking about your life, and appreciating all the little things that you're able to do.  They may not be "fun" tasks, they you can do them.  

Days like today, remind me why I push so hard to try and book chronic pain seminars.  Days like today, remind me why I'm so desperate to educate family members, friends, the communities and health care workers.  Lawyers, lawmakers, pharmaceutical companies, and legislature, about life with a chronic pain and fatigue illness.  As I always say, if we can't make others understand then we won't even have a prayer of finding a cure for these illnesses.  We won't have a prayer of finding a concrete treatment plan that relieves us of the symptoms that plague us.  Education is key.  As my photo below says, "Education is key.  Without education there won't be change.  Without change, there won't be research.  Without research, there won't be a cure.".   I'm not a pushy type of person at all.  In fact, there's no way I could make a living in sales.  No way.  I'm just not the type of person that could approach someone and try to push them to make them "buy" something.  I also hate confrontation.  I despise asking for help or accepting help.  Accepting help really hurts my pride and makes me feel inadequate that I needed help in the first place.  After telling you all of this, I hope you see how far out of my comfort zone I've gone, to ask for donations to help me get going in presenting my chronic pain seminar.  I hate asking for donations, and it honestly really does hurt me.  Still, I've sucked my own feelings up and I've asked for help.  I'm still asking for help.  This seminar, and the hope of finding a cure for my illnesses outweighs my own "pride".  I'm not doing this just for me though.  I'm doing it for the 1,000's of people like me, who suffer and struggle to make it through a day.  It's no wonder why depression runs with these illnesses.  Wouldn't you too be depressed, if you had to live every day in pain?  If you had to live every day being more tired then when you went to bed the night before?  If you couldn't even stop and appreciate the "little things" that life has to offer.  Once again, please share this blog and my mission with every friend, relative, business, organization, etc that you can.  If everyone would donate even $1 to the chronic pain seminar fund, it would add up quickly and I'd be able to start presenting this seminar and advocating for more research.  I challenge every person that reads this post, to donate $1 to the fund and to challenge all of your friends and family to also accept this challenge.  The link to the seminar donation page is on the right hand side of the home page or on the right hand side of the "Chronic Pain Seminar" page.  It's the Go Fund Me link.  Please feel free to download this photo and share it within your networks.  I took this photo myself (another small thing that I struggle now to do - photography) and the words are my own so there isn't any copyright infringement to worry about.