Tuesday, February 14, 2012

The Most Common Misconception About Fibromyalgia

I was doing some research to try and put together a fact vs myth type post about fibromyalgia.  I'm still going to do that within the next day or so, but I ran across an interview tonight that has a few paragraphs worth posting.  The interview was with Connie Ludtke, R.N. who's the nursing supervisor of the Fibromyalgia and Chronic Fatigue Clinic at the Mayo Clinic, Rochester, MN.  The interview is posted on the Mayo Clinic's website and you can find the entire interview HERE.

When asked, "What is the most common misconception about fibromyalgia?" this was her reply:

"The top misconception is that people think fibromyalgia isn't a real medical problem or that it is "all in your head." It's sometimes thought of as a "garbage-can diagnosis" — if doctors can't find anything else wrong with you, they say you have fibromyalgia. Being diagnosed with fibromyalgia does require that you meet specific criteria, including painful tender points above and below the waist on both sides of the body.
There's a lot that's unknown about fibromyalgia, but researchers have learned more about it in just the past few years. In people who have fibromyalgia, the brain and spinal cord process pain signals differently; they react more strongly to touch and pressure, with a heightened sensitivity to pain. It is a real physiological and neurochemical problem."

When asked, "Can misconceptions about fibromyalgia be harmful?" this was her reply:

"If people with fibromyalgia believe there is no help for them, they're going to stay stuck. Even if there isn't a cure, there are treatments that can really improve their quality of life. When people learn they have fibromyalgia, they can go through the stages of grief and loss — including experiencing anger and attempts at bargaining. When they get to the peace of acceptance, that's when they can realize there are limits to what medical technology can do. There's no magic surgery or pill that can fix this. They need to recognize that it's OK to ask for help with things and that it's OK to give themselves time for exercise and relaxation each day. They need to make their own health a priority. "

I find both of those paragraphs very informative.  Especially the last one.  When I read that people with fibromyalgia can go through the stages of grief and loss, it really hit me.  Sure, we've all heard of the "grief cycle", but for me I related that to someone who's told they have cancer or that they're terminal.  After reading this, and really thinking about it, I see that's exactly where I'm stuck right now.  In the grief cycle.  I'm not yet to peace and acceptance stage.  Looking at the grief chart above, I'm stuck going back and forth between depression, guilt, and obsession I think.  Where do you fall in the cycle?

1 comment:

  1. I was just talking to a friend of mine tonight that did not know that there were blood tests that can show that you have inflammation in your body and other tests that they do before they diagnose you with Fibro. She thought that is was just where you are always in pain. Another person in this world that thinks we all are just whimps I guess. :(