The phrase "The common cold" actually makes me chuckle right now. Common? Not with me. I never have anything common wrong with me. Even something as simple as a "common cold" is not so simple. My daughter had a cold and yeah, she complained a little about her nose being stuffy/runny and a sore throat, but that was it. She had it a couple days, it ran it's course, and now she's all better. I, on the other hand, am now sick. Not just stuffy or runny. Down right time-to-consider-going-to-the-ER-to-get-a-breathing-treatment-sick. My nose IS stuffy and runny, my head hurts, but the most frustrating is the constant 100% of the time wheezing. Then the coughing that the wheezing causes. Then the dizziness that coughing brings on. Then, I start back at the beginning to make the circle again. On a positive note though, I do not have a sore throat like my daughter did. Lucky me! =)
Just about every day I feel like I have the flu on some level. The muscle aches, the fatigue, the joint pain. Tonight, if I didn't know better, I'd swear I have the flu. My front thigh muscles are absolutely pulsing and screaming in pain. My arms feel like they're both weighted down. I've had the flu shot though, and I don't think I'm running a fever. I just seem to get everything 100 times worse then everyone else I know. If someone gets a cold, I get bronchitis. If someone gets bronchitis, I get pneumonia.
I feel like all I do any more is complain and whine. That makes me feel bad. I know that I have to be incredibly annoying to those around me and to my friends online. This isn't who or what I want to be. I want to be happy, and laughing, and having fun. Sometimes I don't think that I even remember what fun was for me. Then, the memories come back, and I remember having fun. I remember laughing and being with my friends. I remember dancing, and doing silly things all in the name of fun. I feel like I'm this fun-loving person, stuck inside the body of an old person. I know that I'm not a "spring chicken". -Oh how I'd love to go back to my 20's and relive my life. There's so many things I'd do differently. I'm also not a "old person" yet either though. I'll be 42 next month. There should be plenty of time left in my life for me to have fun. To hang out with friends. To fall in love and be loved by someone. None of that will happen though, when I'm always in pain and complaining.
Have you ever been in such constant annoying pain that you could seriously just scream at the top of your lungs? Not from the pain being so sharp ...or not so horrible like labor pains, ..but pain so constant that after a week of it you're ready to just scream and lose your mind? This is where I'm at tonight. I can always handle pain like this for about a week straight, then I start losing it. That's when the depression kicks in and I start questioning "why" I'm even still here on earth, if I'm going to have to live every day (or most days) in this kind of pain, and feeling alone, desperate, and isolated. If you "know" me at all through this blog, you know that I don't sugar coat anything. The reason I don't sugar coat anything, is because I feel it's important for others reading this to know exactly and honestly, how I feel. It's important to me, so that when someone else is feeling this way, they don't feel alone. I know what kind of stigma depression carries in the communities. I know that people who do suffer depression, sometimes feel embarrassed because of it. If you are reading this and know what I mean, please don't ever feel like that again. Your feelings are real, and they're valid. You're not alone. If people who "look down" upon those with depression had to live a day in our lives, they'd think much differently.
As most of you know, I'm trying to break out into the public speaking and advocacy world. Because of this, I've had some people tell me that maybe I shouldn't be so honest, ...that it may hurt me in my new career. I still stand by what I've said to those people. What I've said is this; those who read about me, or those who may come to a public speaking engagement that I may have, deserve no less then the truth. Maybe I "am" going to be looked at in a different light because of my education and advocacy efforts, but if I can't be the real me, then I don't want to be anything at all. The people who are going to listen to me speak, or read what I write, deserve no less then the truth. If by being honest I help even one person to not feel alone, or I help one person who isn't sick realize what it's like to be trapped inside a sick body, then my being honest is worth it no matter what some others may think or say about me.
I don't have much to offer anyone, but what I do have plenty of is compassion, empathy, caring, concern, and a willingness to do anything I can, to help whoever I can. This illness may have stolen my fun and my laughter, but it will never steal my heart.