Showing posts with label ME. Show all posts
Showing posts with label ME. Show all posts
Wednesday, November 12, 2014
I Need Heat!
I detest asking for any kind of help when it's for personal reasons, but I don't have a choice. With my health conditions, going outside in the winter is hard enough on me, let alone living in a cold house, without a working furnace.
A couple weeks ago I went to bed with the furnace working fine. The next morning when I woke up, it was chilly in the house. I turned up the heat to take the chill off, and nothing happened. I then realized something was wrong with the furnace.
I have a friend that lives in another state and her husband owns a HVAC shop. Her husband called me, and tried to walk me through some steps to see if he could figure out what the problem was. He deducted that it wasn't something simple and said I'd have to have a technician come look at it.
After posting on a local garage sale site, a certified technician said that he'd repair it for me, just for the cost of parts. He finally was able to come look at it this past Monday. It turns out that I need a new inducer motor, control board, and something with my vent for the poisonious gases. He looked up the price of the parts in front of me, and they're around $900 ...and I do believe that was before taxes. He said a brand new furnace would run about $2000.
To say this made me physically sick, is an understatement. I'm disabled due to chronic neuroimmune health conditions and I live off of $721 a month. That barely runs my household and buys food. It's impossible for me to come up with the money on my own.
I contacted our community agencies and there's only one program that could help me out, but I don't qualify because you have to have insurance on your home. I bought this house at sheriff sale and due to the number of years it sat empty without insurance, plus it's age, the cheapest home insurance quote I could find, was $387 a month. No way in the world I could afford that, so the house isn't insured.
I'm using an electric space heater, which scares me to death that it will cause a fire, and an electric blanket. The heater is keeping it about 56 degrees in here right now, and we have colder weather that moved in today. Next Tuesday on my birthday, November 18th, the high is only going to be in the 20's. I live in NW Ohio, and it get's cold here!
If I can get the money to repair the furnace, I'll do that. If donations exceed the repair and are enough to replace my old furnace, I'll replace it. If there's anything beyond that, I'll fix the hole in the roof in my back room, that's letting cold air pour in through it.
Please help me spread my campaign by sharing it across your social media networks. You can click HERE to view or donate to this campaign. Thanks so much!
Wednesday, February 27, 2013
Chronic Pain Webinar Dates
I'm holding a chronic pain webinar and hope you all join me, so that WE can all start educating and advocating for a cure for chronic pain/fatigue illnesses! The more informed and educated that WE are, the more WE can all start making a difference. Join me for discussions on research evidence that Fibromyalgia IS a real disorder and how that's been proven. Learn what some of the top myth's surrounding Fibromyalgia are, and why they're myth's. I'll discuss ideas and ways for you to try and get your family members, friends, and community members to understand what living a day in the life of a FMS/CFS/ME patient is really like. WE'll go over some of the hurtful, rude, stereotypical comments that are sometimes directed at us. Some of the information that WE will cover would also be very useful for you to open up a discussion to your doctor and/or his staff, if you are being treated by a doctor that doesn't act like they really believe what this awful syndrome puts us through. We'll also go over some tips that may help you in a pain flare, along with just how little money for research the federal government hands out for research on Fibromyalgia compared to some other diseases. I'll also be covering some statistics related to living with chronic pain that will be a real eye opener to some of you. If WE don't start advocating for ourselves and others with our same conditions, then how can WE expect any one else to? WE have to stand up and make people start taking notice of us, and let them know that WE refuse to sit back any longer. That WE demand our peers take notice of what WE go through on a daily basis just to survive. I can't fight this fight alone, I need YOUR help. This is something that WE can accomplish together though!
March 23, 2013 I'll be presenting the webinar at 2pm EST and then again at 7pm EST. I'm also planning on presenting the webinar again on Sunday March 24th, at the same times as the Saturday presentations. I'll except sign-ups until 10pm on Friday March 22nd. If you'd like to join in, the cost is $25 and you're more then welcome to have your whole family, or some of your friends, sitting in with you at the webinar. I know for me, it was a constant struggle in the beginning for my family to really grasp how Fibromyalgia truly effected my life. My mom and youngest daughter accompanied me to my first live seminar and afterwards my mother told me that she "gets" it now. She told me that she'd learned things from my seminar about my condition, that she hadn't known just from us talking about my condition at the mother/daughter level. She had tears, when she finally "got it". My daughter gave me a huge hug and told me that she's sorry that she'd blow me off when I'd want her to sit down to discuss my illnesses with her. She also apologized for not helping me as much as she could have. If your family & friends are having a hard time realizing what this does to your body and mind, they will really benefit from sitting in on this webinar.
Send payment via PayPal by Friday March 22, 2013. The email address to send the money to is: jaammull (at) aol (dot) com. Please make sure that you send it to me as a "gift". Also, make sure that in the notes section you give me your name and which session you're signing up for. By 12am Saturday, March 23rd, I'll email you with the instructions on where to go, to gain access to the webinar.
The webinar will run for approximately 2 hours, give or take due to audience participation and questions. You should have a notebook and pen handy, in case you'd like to jot some notes and/or questions down. The more people we have joining us in our discussion, the more we all have the potential to learn from one another so please pass this webinar information along throughout all of your social media sites and by word of mouth to your friends, family, doctors, hospitals, clinics, etc. I hope to see you all there!
Gentle Butterfly Hugs to you all!
Labels:
cfs,
chronic pain,
dates,
fibro,
fibromyalgia,
fms,
March 2013,
ME,
registration,
seminar,
speaker,
webinar
Tuesday, October 23, 2012
Everything Hurts
Last night was rough pain wise and it's continued through the entire day and night tonight. I can't hardly move. When the pain is this bad, it starts to really get me down and make me feel depressed. Even my head, upper legs, and the back of my arms hurt tonight, in addition to my every day pain of neck, shoulders, knees, lower back, and mid-back. I'm so sick of hurting all the time. I just wish that I could look and feel good for one single day ...and when that day arrived have the money to take advantage of it by going shopping, out to eat, then out to a movie or live performance or something. I want to walk around, and laugh and have fun. I want to go out and walk through parks, taking nature photos as I go. I used to do this. It would hurt me, but it was doable. Now? No way. I used to take my camera pretty much anywhere I went. Now, not only can't I stop along the side of a road to walk out in the middle of a field to take a photo I may want to take, but I can't even hold the camera up long enough to walk anywhere with it. Well, I can hold it up, it just causes me extreme pain in my arms, neck and shoulders. So therefore, I can't still do it. Not enjoyably anyway.
I can't convey the excitement I'd feel when I would take photos. The excitement of getting home and downloading them all, to see what natural beauty I had captured at that particular second in the universe. That nano-second in time that could never, ever be reproduced. The photo above is one of those nano-seconds that I captured. The top of the cloud looks as if it's lined with silver. Rays of golden light opening up out of the cloud and reaching towards the sky. As if it's a tunnel of light to heaven. All of the rays of gold to the right side of the photo. Like rays of golden hope. Hope, that if I keep talking; that if I keep writing; if I keep advocating for more research, that maybe, just maybe a cure or at least a concrete universal treatment plan may be found. If not found in time for me to utilize it, then at least in time for my daughter or others younger then me, to take advantage of it.
It really hurts my heart, that so many people (most people) just doesn't have a clue how bad this pain can be. I call these people DHAC's, which stands for "doesn't have a clue". Most DHAC's are well-meaning people and aren't trying to hurt us, or make us mad, they just honestly really DHAC. I have a DHAC in my life. She is the sweetest woman in her early 50's and she really cares about me. She's pretty much the only adult IRL (in real life) friend that I have anymore, and I'm pretty sure I won't even have her for much longer. At least once every week or two she'll call me up telling me that I need to get myself out of my house. She'll tell me how I should be going to the gym to do cardio and weight lifting with her. The best thing that she regurgitates at me at least once a week? "Well, you know my BFF K. that I've had for 30 years. She has fibro and she gets around so much better then you do. You just need to snap out of it.". OR....she tells me over and over how there's a 60 year old woman who works out at her gym who has Fibromyalgia so if she can do it, then I certainly should be able to do it too.
See, that's the funny thing about Fibromyalgia or Chronic Fatigue Syndrome, arthritis, even auto-immune diseases such as Lupus, RA, etc. You can line 20 people (or 50, or a 100) up beside each other and you may not hit two people who have the exact same symptoms. You may not hit two people who are affected the same way. They'll all have varying degrees of pain. Some people only have a few of the symptoms of fibro and others may be affected worse by their symptoms and pain levels. Just as when what people call "the flu" (that is actually an intestinal virus) some people have a bad case of it and some people have a less severe case of it. Unfortunately, I have a "bad case" of Fibromyalgia. I have all the symptoms and co-conditions. I have the acid reflux, I have the IBS, the Fibro Fog & memory loss, the insomnia, and on and on and on. Does this well-meaning friend honestly think that I like not going out and doing things? No, I don't. I despise it. You can't even begin to understand how bored and lonely and stir crazy I go. Days like the last few though, I don't really have much of a choice. I always have to use the chair arms to "push" myself out of my chair and yell "ow". The last few days it's a double "ow" because the back of my arms hurt so badly too.
My pain has been so bad for the last two days that I'm really not dealing with it well by tonight. Not at all. I'm starting to feel whiny, and I keep blinking back tears. Just typing these words made me start feeling emotional again and I had to shove the tears away. I seriously feel as if I'm losing my mind and going mad from the pain. It isn't like I have a little pain. I have pain. -I had four children natural without pain meds. I know what pain is, and I have real, debilitating, pain. When I was first trying to come to grips with my illnesses, I kept asking "why me?". "Why me God? What have I done to deserve a life filled with pain every single day?". I always felt that God wanted me to use my sicknesses to help others who are also sick. I thought he wanted me to educate and advocate to fight for the rights of those of us afflicted. I felt that he wanted me to bring awareness to the table, to advocate for more research for a cure. Now? I'm not so sure. I feel that if I had been right, that God would've opened the doors for my chronic pain seminars. Maybe it just isn't the right time yet? I don't know. All I do know is that's where my passion lays. I also know that presenting chronic pain seminars is the only type of work I could possibly do at this point in my life. Due to the fact that it isn't something I'd be doing every day, along with the fact that they only take a couple of hours, hours that I could alternate standing and sitting as needed while doing it, it's the only way I can fathom to do to support my daughter and myself. I've always heard the saying "God helps those who help themselves". I've tried every thing I can think of to try and help myself on opening the doors to public speaking and advocacy and it still hasn't panned out. My birthday is November 18th, and I've posted everywhere that the only thing I want for my birthday this year, is to have enough money to present at least one chronic pain seminar. God bless those who've donated to my chronic pain seminar fund on GoFundMe, but I've only raised $75 in the four months that I've been advocating and asking for donations. -And you guys can't imagine how hard it was for me to make the page and ask in the first place. I really don't think there's any way for me to hit my birthday goal of having the $75 raised up enough to hold at least one seminar. I've said before that I'm not looking for a free handout. I'm looking for people and/or businesses that believe in me and in what I'm trying to do. I'm looking for the help of getting started. After the first couple, then the seminars will start paying for themselves.
The grief wheel is a funny thing. I'm not sure that you ever get out of it. I'm beginning to think that it's something you just keep going around and around and around on until you die. Every time I think I've finally come full circle with it, I find myself in the questioning and angry stage again. Then we start all over. I'm dizzy and sick of spinning around on this silly wheel. Enough is enough. Unfortunately though, since doctors and scientists doesn't have a cure, or even any single medicine that will take away my pain and my fatigue, I'm just stuck here going around and around and around. No matter how hard I have to fight to believe and have hope, I will. Hope that a cure will be found. Hope that research will provide answers so that medicine that works will come to light. Hope that a door will be opened for me, and my career in advocacy will take off. I can't lose faith of my hope, because if I do then what will I have left?
Sunday, September 16, 2012
Who Wants To Win $200?! Enter To Win Here!

- Prize: Whatever you want up to $200 (shipping included) Do you want a Kindle Fire? Maybe an iPod, hummm maybe gift card to Target, oh wait Paypal cash? We don't care we want you to have it your way! So let the games begin, and let's have some fun with this one!
- Event will run from Sept 20th until Oct 20th.
- Free Facebook
- Additional likes $2
- Daily Votes $3
- Co-host spots $10. (with this you will receive your blog mentioned all blogs posts, FREE Facebook, and FREE Twitter! If you choose this please be sure to add your links in the assigned spots on the form below)
Thursday, August 9, 2012
Bad Day
Do you ever have one of those days? You know, one of those days that seem bad from the moment you crack your eyes open? Well, that's been me today. I finally fell asleep last night this morning around 5am or so. I heard the kids come home around noon and cracked my eyes open not wanting to move. From there, it just seems as if it's gone downhill.
I haven't been able to stop yawning all day long. As for waking up as tired as when I went to bed? I've been more tired then when I went to bed. My head has killed me all day. I've felt as if someone yanked the plug out of the electrical socket on me. I haven't been able to concentrate on anything for more then about 5 minutes at a time, and doing anything has caused extreme pain in my back. My knees? Yeah, I feel and sound like an 80 or 90 year old woman every time I go from a sitting to a standing position. I have to use the arms on the chair to help pry myself up, moaning outloud in pain as I do so.
Pain or not, I was bound and determined to make supper tonight. My daughter loves my homemade broccoli, rice and cheese casserole and had asked me to make it for her. Once I had it ready to baked, and shoved it into the oven, I came back in here as quickly as I could with walking hunched over and collapsed into my computer chair. I was gasping from the pain in my back and was near tears. After resting for about 30 minutes I got up and went in to bread and fry the meat. Again, at about 1/2 through, I was in so much pain I couldn't hardly stand it. Trying to hurry, I ended up trying to fry my little finger along with the meat! Yep, while dropping a piece of meat into the boiling, bubbling grease, I stuck my little finger right down into it!! I'm not gonna lie, that made me gasp and say a few curse words under my breath as I was flipping on the cold water in which to drown my finger in. This meat,...this dang breaded and fried in HOT oil meat, was a new recipe. Guess what? It. Was. Disgusting. So, I didn't even burn my finger over something that was good. It wasn't even worth it in the slightest LOL. I took one bite and threw mine away. Yuck!
So, I'd been weighing the cost of whether I should print out one copy of all of my seminar handouts then take them to Staples to have all the copies printed or if I should just print them all from home. Since the dead beat....or I mean, the man, that I'm still legally married to hasn't paid me one single penny of child support or alimony since May money has been super tight to say the least. Somehow, he had the money to take himself and his girlfriend to Cedar Point last Saturday, but miraculously he doesn't know "when" he can send my daughter and I any support according to the text her sent her. So, I decided that it may take longer, but would be more cost effective for me in my situation to just print them here at home. A new black printer cartridge is only $11.99 for me, because I buy refurbished. That sounded a ton better to me then paying out $50-$75 for copies at the store. With the day I had been having I should have known better. It printed a few copies, then it said that something was wrong with the ink cartridge. We took it out a couple times and reseeded it, to no avail. I turned it off then back on. Nope, nothing. Still that damn flashing yellow light. We unplugged it and let it sit for awhile. Still nothing. I removed the cartridge once again and used a damp coffee filter with bottled water and wiped the contacts down on the cartridge and inside the printer. Finally! It worked again! The catch? I'd set it for 40 copies and 1 would come out. Yep, one. Do you have any idea how easy hard it is to keep track of how many copies you've printed when you're sitting there clicking the print button ...waiting on the page to print ...dropping it into a pile ...then doing it all again? With a horrible headache? Being in pain and yawning all the while??!
I still tolerated it and kept trying to plug along. Next thing I know, it's printing the page as if it's printed over it a hundred couple of times. What was wrong with it this time?? I don't have a clue. I gave up. I threw in the towel on it for now. Maybe I'll try again in a bit. Maybe I won't. Maybe I'll find the money to go have the copies made rather then doing them themselves. I don't know. I don't know anything today/tonight! The only thing I do know tonight is that it's been a bad day and I'm sick of it! I'm ready for tomorrow to get here, as it'll have to be a better day, wouldn't it?
I opened a new tab, played this song, and wrote this whining, complaining blog post! This song always helps me to feel better when I listen to it and sing along! Oh yeah, be sad I mean happy that this isn't a video post because I guarantee you that I'd never make it as a singer LOL. I do much better at sitting here complaining then I do singing. Alas, it's a feel good song that I love. Well, back to attempt the printing process yet again. I'm quickly running out of time. The seminar is Saturday. Two measly days away. I need to get crackin'!
Sunday, July 22, 2012
Quality VS Quantity Of Life
Last night, I went with my kids and their friends to the little village that's 5 miles away from us. They have a little one day festival type thing, then end the night with fireworks. Since I wasn't able to watch fireworks on the 4th of July, I was excited to go.
Every year I take photos of the fireworks but this year, I decided to try and video them too. My camera is a Canon T3i and it's supposed to have professional quality HD video built in. I'd never tried using it before though, so I was fumbling around in the dark trying to figure it out lol. I couldn't believe though, how much it hurt me to video it. I had to tape a little, then shut the video off, then tape a little. A minute or so into the third taping, I had to ask my daughter to take it. I was left with horrible neck, shoulder and arm pain, and it put a charley horse in the middle of my back. Even with the first taping I did, I missed having it centered and getting it all in, due to the pain it was causing me to hold the camera up aimed at the sky.
I was going to upload the first clip, to show how shaky I was trying to video right from the beginning, but for some reason I couldn't get it to upload to blogger. It keeps telling me there was a problem uploading the video, but it doesn't tell me what the problem is lol. I will insert some photos of fireworks instead I guess. I had taken some before I got the idea to try and use my video for the first time.
We all know that doing simple household tasks can be hard or even not doable at all sometimes, but it's the simple, little things, like trying to shoot a video with a camera that always throws me for a loop. Things that people take for granted and don't even think about. I never would've guessed how much it would hurt me to take a video. My neck and arms still hurt this afternoon from it.
This is no way to have to live. Fibromyalgia (or insert Lupus, Arthritis, CFS/ME, etc) may not be fatal, but it sure stills your quality of life. I've always believed that quality is better then quantity, and that holds true in my health and my life. Not being able to bend over and pick something up from the floor, or run a sweeper. Being in tears after fixing a meal...sometimes in tears after just frying an egg, having to take breaks to unload and reload a dishwasher.... I could go on and on. That's not quality, that's quantity. I have a friend that wants my daughter, her boyfriend, and I to go to the zoo with him. He told me to pick a day that I wouldn't be in a lot of pain. I rolled my eyes and told my daughter and her boyfriend that this friend of mine needs to be the first one signing up for my seminar to learn the truth about living with chronic pain. Oh how I wish I could know what day would be better then another for pain. Unfortunately, it just doesn't work that way.
I'm asking again, for you all to please share this blog with your friends and family. If you're a blogger yourself, please share this blog with your readers. It's so very important to me, to educate people about life with an invisible illness that causes chronic pain. Unless you live with it yourself, it's really hard to grasp what life is like, living this way. Someone once said to me "At least you don't have cancer. That could kill you and with this you won't die.". I paused, then responded with "You're right. It won't kill me. Have you thought about the fact though, that people with cancer have hope? There are solid treatment plans mapped out for all types of cancer. A person with cancer, has hope of one day being cured. They have hope of their pain and sickness ending. Even if they do die, at least they aren't living for years and years in sickness and in pain. One way or another, their pain ends. I don't have that hope. I know that I will have to live every day of my life hurting and sick. If the quality of my life is going to be so limited and so painful, then do I really want to live until I'm 70? 80? 90 years old?". I also went on to say that I know what a horrible beast cancer is, and my heart breaks for those that have to go through cancer. Please don't think I'm an insensitive jerk because I'm not. In fact, had I finished nursing school, I wanted to work in pediatric oncology. This is just a way to get people to stop and think about what invisible illness and chronic pain sufferers go through. I'm really hoping for a packed house for my seminar, because people really need to understand and learn. They really need to stop and think. Again, please share this site or my facebook page, and the flyer for my seminar. I thank you all in advance!
Friday, July 20, 2012
Seminar Excitement!
Things are moving right along for my first chronic pain seminar. A caring friend made this flyer for me last night. I love it! What do you all think of it? The pastor of the church I'm going to hold it at, is emailing the flyer throughout all of the other churches in that denomination, and an elder is taking flyers to the hospital that she's a nursing supervisor at. My daughter, Courtney, also posted the flyers in some online garage sale sites that are local to us. Sunday, I'll be having all of the material for the seminar, including the flyers, printed up at Staples and will begin to start putting the packets together that I'll be giving out at the seminar.
This has been a dream of mine, since I was first diagnosed with fibromyalgia. Although fibromyalgia is what I was diagnosed with, this seminar will help anyone who suffers from any type of chronic pain condition and/or invisible illness. To see my dream finally coming true, is surreal to me. Now, as long as I have people show up, I'll be feeling pretty happy! Having people show up is probably the biggest hurdle I'm up against lol. I'd love to be able to advertise in the newspapers around here too, but I just don't have the money for that. My husband still is acting like he doesn't have a family. Since he moved 3 hours away to live with some woman he met on the internet he hasn't spoke to us nor gave us any money for child support or alimony. My hearing to get child support started isn't until the end of August.
To know that I'm working to make my dreams come true, and actually accomplishing those dreams, fills me with a great deal of pride and personal satisfaction. I may be sick, but I can still fight and have a voice that's heard. I'll never give up trying to advocate for those of us with conditions such as I have. This will be a life-long journey for me.
If everyone could leave me a comment, telling me what you would like to see discussed at a seminar such as I'll be putting on, it would mean a great deal to me. I know what I have planned to cover, but maybe I've missed something that would be beneficial to my audience. I'd be humbled for you all to work with me, so that I can present the best possible seminar that I can!
Sunday, June 24, 2012
Do You Just Grin and Bear It?
Today, someone left a comment on my facebook fan page for this blog. They pretty much said that a lot of the time, they just grin and bear it so not to make others in their family feel bad for the pain they're feeling. She asked if any one else does this too. My response to her, was that I think everyone that lives with a chronic pain condition does that sometimes.
Are you guilty of doing that? I know that I am. I know that complaining isn't going to make my pain go away, and I hate to burden those around me by making them feel bad for me or to worry about me. No matter how much I may want to smile though, some days I just can't. The pain, the fatigue, the depression just becomes too much to hide. That's okay too.
Like the saying above, some days I do feel like I'm an actress. I get dressed for the day, brush my hair, look at myself in the mirror and tell myself "Today I won't be weak. I'm going to be strong, and I'm going to smile. The pain will not win today.". I plaster a smile on my face, even if inside I'm literally crying. I pretend that "normal" is my life, when in reality my life is as far from "normal" as it can get. It isn't normal to take almost an hour to unload and reload a dish washer. It isn't normal to not be able to fall asleep sometimes for 48 hours at a time. It isn't normal, to live in constant physical pain every day of your life. It isn't normal to have to fight off depression each and every day. It isn't normal to wake up feeling as tired and unrefreshed as when you fell asleep. It isn't normal to have pain on a daily basis so bad, that you sometimes cry. It isn't normal to have your joints and muscles stiff and achy every morning when you wake up. I could keep going with the "it isn't normal" stuff, but you know what? For me, and for other people who suffer from a chronic pain condition, it is our normal. We've had to learn to accept all of this. We've had to change our perspective of what "normal" means to us.
Sometimes, I feel like I really am just going through the motions of life. It's just what people with a chronic pain condition have to do. We have to adapt to what normal means to us. If more research were to be done on chronic pain conditions, then maybe a concrete treatment plan would be found. One that would allow chronic pain sufferers to change their perspective of normal, but to what society accepts as normal. This will never ever happen, unless there's more funding for research. There will never be more funding for research, unless there's a demand for that funding to be made available. There will never be a demand for funding, if people can't understand. People will never understand, if no one ever stands up and speaks out. I'm willing to do that. I want to do that. I want to educate the world on what it's like to live a life of constant, chronic pain and fatigue. Please consider donating to my "Go Fund Me" account, so I can start educating. So I can start demanding, that progress in research be made for people like us. We deserve to be able to smile on the outside, without silently crying on the inside. We deserve to be able to go on family outings with our family, instead of staying home alone because the pain is too bad. We deserve to be able to clean our homes, and make a meal for our family, without it bringing us to tears. We deserve a normal life.
Sunday, May 6, 2012
I Demand To Be Heard
My illness (all of them) may be invisible, but my voice isn't! May is Fibromyalgia Awareness Month, along with several other neuro-immune disorders. What better month for me to start working hard to break into public speaking? This week I'm going to start contacting groups, organizations, universities, etc. to introduce myself, my mission, and to try and book a seminar. It'll never happen unless I make it happen. If you know of a church, organization, university, medical group, etc. that may be able to utilize my service, please either give me their contact information, or give them mine. My seminar will be "Living With Chronic Pain/Invisible Illness - A Patient's View". Let's work together and try to educate as many people, med students, lawyers, politicians, researchers, etc that we can! Let's take a stand and DEMAND attention!
May 11th (1 day before the official Fibro Awareness DAY) will be only 3 months that The FibroFrog Blog and FB Fan Page have been in operation. In that short time, we've already reached a Google Page Rank of 2 (which is GREAT for this short of a time period), my Klout Score has Sky Rocketed to a 60, and we're at almost 1200 FB Fans. I've had several mentions and DM's on Twitter. Several blog posts/articles have been featured in many online newspapers, as well. I feel that's phenominal, and proves that there are MANY of us out there, and many "interested" people. I'm passionate to educate on this subject, and feel that public speaking and seminars on this, is what I'm supposed to do. I feel like this is the reason I got sick in the 1st place. I'm asking all of YOU to be my personal agents and help me be heard! Spread the word about our illness, about me, and about my seminar. Let's let it be known that we demand acknowledgement, research and CURE!
Subscribe to:
Posts (Atom)