Wednesday, October 31, 2012
Tuesday, October 23, 2012
Friday, October 19, 2012
Stephanie K. T. via the easy entry for all LoveMy2Dogs fans! Congrats Stephanie!! I've sent you an email. Please respond to me within 48 hours or a new winner will be selected. =)
Sunday, October 14, 2012
This is a picture of my grand daughter Leah when she was 9 months old. Why am I placing a photo of her on a post about illness defining someone? Because it's a picture of her crying, and that's what I feel like doing every time someone tells me "Don't let your illness define you. You have fibromyalgia-arthritis-lupus-RA-CFS-COPD-Fill in the blank with "whatever" you may have, but it doesn't define who you are.
Friday, October 12, 2012
Ok everyone, I'm pushing a $1 Challenge until my birthday, November 18th, in hopes that I have enough in donations by then to rent at least ONE conference room and pay for the advertising to hold at least one chronic pain seminar! That's all I want for my birthday ...to be able to educate and advocate for those of us who live with chronic pain and/or invisible illness. Even if you yourself can't donate $1, would you please share the link on your social media sites for others to see? If you're a blogger, would you extend this challenge to your readers? It isn't about the amount of the donation, it's about the volume of donations. If enough people see it and donate even $1, then it will add up quickly! Here's the link:
GoFundMe Donation Page Please help me to help all of us! Clicking the butterfly will also take you to the donation page!
Thursday, October 11, 2012
You see when I first started this blog I had the help of a very good friend, Nessa of Texas Housewife. She spent so much time with me sharing the ins and outs of blogging and social media. Little by little I grew. Then I shared with some of my friends and they did with theirs too. That is how this whole community grows so. We meet others while hopping from blog to blog and before you know it we have been sharing our lives for 3 years now.
Well when I first started out every single new follower was the most exciting thing. IT was like Christmas every day. So I wanted to do just that....make Christmas every day for others. So with the help of my friends and then add in the friends they want to support we came up with Friends Paying It Forward.
It is really easy. Just meet the following bloggers. Then enter via the Rafflecopter below. We ask that you leave a blog comment here. That you follow the friends via GFC (that is the Christmas part!). Then you can follow also on facebook or twitter if you wish. It will give you extra entries. Oh and of course you can tweet! That is an extra daily entry! On November 1st a winner will be randomly chosen. They will be notified and when they respond within 24 hours they will win $100 gift card via pay pal or through the mail with a Visa or Master Card gift card of their choice. The physical gift cards may be broken down into two $50 cards.
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Wednesday, October 10, 2012
When you ask a person if they have any chronic illnesses, it might be construed as disrespectful when they tell you one of their chronic illnesses is fibromyalgia and you reply with a long drawn out "oookkkkaaayy. Well, do you have any real chronic illnesses?"
Your second fail followed just moments later. After you pointing out how swollen the entire top of my hand was, and telling me to take my rings off before they "get stuck", you go to take my pulse and you grab my affected wrist. As you grab it and start squeezing it, the first indication that you just messed up would have been my body immediately tensing up while I loudly yell "Ouch! Your thumb is really hurting me!". You'd think that at that point, you might have immediately let go and took the ONE step to the side that you'd need to take my pulse on the wrist that isn't in any pain or trauma. I'd think an "Oh gosh! I'm sorry I hurt you" would have quickly followed. I honestly couldn't believe that instead you said "Well that was your wrist. I thought you said your hand hurt. Which is it? Your hand or your wrist?". Are you kidding me?! I told you that origin of the pain was on my hand about 1/4-1/2 of an inch above my wrist. You can clearly see that my hand is swollen from my wrist to my fingers. After all, you pointed out that I needed to have my rings off because my fingers were swelling. Therefore I'd think you'd have the common sense to realize that part of your LARGE thumb was also pushing on the spot of origin on my hand, 1/4-1/2" above my wrist and that my wrist itself also has pain and is also swollen along with the hand, and the fingers.
Now, I thought I was going to a hospital to be diagnosed and treated. I didn't realize that I was going to have to play "baseball" but unfortunately you, Mr. RN, forced me to play. Your third strike with me? Yeah, that would be when you were wrapping my hand and kept disgustingly telling me to hold my hand out straight and to keep my fingers spread apart while you were wrapping. As I was saying "ouch" and gasping from pain taking my breath away as I attempted to hold my fingers apart, I'd think that you'd find a different way for me to position my hand/fingers that wasn't as painful. I'd already told you that moving my fingers in any way caused me excruciating pain. You wanna know something else? I was only 4 classes away from sitting for MY nursing state boards and there was no reason in the world for you to even want me to spread my fingers completely apart while you wrapped my hand. Not my fingers, my hand. Do you see any reason for him to freak out, unwrap, yell at me to keep my fingers spread, and re-wrap my hand?? Because I sure don't!
You, Mr. RN Quinton, made it crystal clear that you don't believe in fibromyalgia and that you had decided that because of my fibromyalgia that you don't believe in, that you were going to be a complete jerk to me and not care about my current pain that I was there to be seen for. I would've thought, after you knowing the doctor was freaking out because my x-ray showed two bones in my hand with pointy calcification spots from an old injury, and many bone fragments floating around in my hand, along with the doctor believing that by hitting the palm of my hand falling into the bath tub that it pushed a pointy bone up and severed tendons and ligaments and him calling to refer me to an ortho right away and telling me that I need surgery, would be a clue to you that I honestly was in pain and this wasn't just some "faker fibromyalgia patient" and that maybe you should've cared whether or not you were hurting me wrapping my hand. (Whew, HUGE run-on sentence but I'm kind of mad and snarky right now and I don't care enough to want to go correct my bad grammer.) Anyway Mr. RN Quinton, that was your third strike and you were out!
You, Mr. RN Quinton, are a total DHAC (doesn't have a clue). You, Mr. RN Quinton, are one of the reasons why I put together my Living With Chronic Pain seminar in the first place. You, Mr. RN Quinton, are why I'm going to call the hospital and attempt to book my seminar in their facility, to present to their staff. Also, you're lucky Mr. RN Quinton, that I absolutely can't stand even the thought of confrontation. Had that not been the case, I would have completely unloaded on you tonight and it wouldn't have been pleasant. One more rude, disrespectful move by you tonight would have pushed me over the edge and I wouldn't have been very polite, friendly, or professional. I had a complete arsenal of words circulating in my head that wasn't very nice!
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Monday, October 8, 2012
Does this woman honestly believe that if there was a proven "cure" for Fibromyalgia that I wouldn't already have jumped on it?! Nooo, I wouldn't do that because I like living virtually every day of my life in pain. I like the fact that I can't go work and make money that I desperately need. I like feeling as if I have Alzheimers at the age of 41. I absolutely love trying to talk to someone and then sitting there saying "ummm... ummmm.... shoot! I forgot what I was going to say.". I also really love the fact that my concentrate is just so great. You know, I've only spent close to an hour and a half now to write these two paragraphs. -Not time consuming what-so-ever. I absolutely love the insomnia that I deal with on a daily basis. You know, because life is just so much brighter when you look at it with 2-4 hours of sleep! I just jump up and down with excitement over the depression that the pain and insomnia cause.
No matter how well meaning people are when they say this stuff to you, it gets really old, really fast. Seriously, I go to the 2nd rated Rheumatology clinic in the entire U.S. If there was a cure, they'd know about it. They'd have me on it. I wouldn't be desperately advocating for research to find a cure. I wouldn't be trying so desperately hard to educate people about the myths and truths of living with a chronic pain and fatigue illness.
Every time Sara says something like this, I try to carefully let her know that I appreciate the fact that she cares about me, but that there is NO cure for Fibromyalgia. She just adamantly keeps arguing with me that isn't true. This is just another reason why holding my chronic pain seminar is so very important to me. There's just so many myths out there that need to be dispelled. If they aren't, then I'm seriously going to lose my mind one of these days and end up completely unloading on one of these well-meaning people in my life. Please remember that I'm doing a $1 challenge, and share it with your family and friends. My prayer is that I have enough in donations by my birthday, November 18th, to hold at least one seminar. To pay for the conference room and to pay for advertising. I challenge everyone who reads this post, to donate $1 to my GoFundMe.org page. You will find the donate button on the right hand side of this blog. Once you're on my donation page, I ask that you please share the link on your social media sites. You all can't imagine how grateful I am for every single $1 donation that's made towards my cause. If you can't accept the $1 challenge, then I ask that you'd please at least share my donation page via your social media sites. I appreciate each and every one of you out there!
Thursday, October 4, 2012
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